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Mental Competence, Caregivers, and the Process of Consent: Research Involving Alzheimer's Patients or Others with Decreasing Mental Capacity

Published online by Cambridge University Press:  17 May 2002

DAVID E. GUINN
Affiliation:
The Park Ridge Center for the Study of Health, Faith, and Ethics, Chicago, Illinois, and IRB board.

Extract

Alzheimer's disease and other forms of dementia are among the fastest growing health problems in America. Dementia incidence tends to increase with age, and the elderly are the fastest growing segment of the population. Medical and social sciences research on dementia involving demented patients is both ongoing and necessary. However, as noted in a report of the Office for Human Subjects Research, “while research with intellectually impaired people generates valuable … data, it also provides significant ethical challenges.

Type
SPECIAL SECTION: AUTONOMY: THE DELICATE BALANCE
Copyright
© 2002 Cambridge University Press

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